21 DAYS TO IMPACT CHALLENGE - day 1

This year, I would like to challenge myself with: 21 DAYS TO IMPACT CHALLENGE with ‘I Am and I Will’ campaign. 

 

Challenge Day 1 – is to make a list of questions that you’re particularly curious to explore when it comes to how cancer affects you, your school, workplace or wider community.  

 

This is my list of questions that I particularly curious to explore when it comes to how cancer affects me! 

 

🔹 What is my Symptoms?;
🔸 Can i survive? ;
🔹 Can my kids get the same diagnosis? ; and
🔸Where is the best hospital for my Leukaemia treatment? 

  

BREATHE - I Am and I Will

 BREATHE

The World Cancer Day theme “I Am and I Will” encapsulates the extraordinary spirit and the strength of the people working in the cancer community. Must Thanks to all my Doctors, nurses and my caretaker  (Family & friend)

 

This coming World Cancer Day on 4th February 2021, I would like to take action how I’m going to spread my wings... this year is going to be my 4th years celebration WORLD CANCER DAY 

 

 

This years I would like to says there is so much to be grateful for, even after cancer… surviving cancer has led me to be more grateful. At the beginning, when cancer treatment ends (just follow up with RBC), I started a new chapter in my life. I think I could be happy and bring hope to other cancer fighter but I’m also worries and fear; what if the cancer might come back and this is really giving big impact to my emotions.

 

Is not easy Going back to “normal”

 

Sebelum ini, Yana kerap berjumpa dengan Doktor di hospital Ampang. Cek darah, tambah darah, sesi kimo, buat bone marrow biopsy, cek fungsi hati dll… dan setelah biasa dengan norma baru dan bila Yana pun sudah anggap Hospital Ampang as my 2nd home, suddenly there is no more jadual yang padat untuk berjumpa doctor. Hanya cek darah untuk pemantauan dan perasaaan itu rasa PELIK. When treatment is done, Yana rasa like they’re no longer fighting the cancer. Mula la rasa bimbang dan ada kala rasa alone and lost without the support of doctor & nurse di Hospital Ampang. Doktor & nurse antara insa-insan penting dalam journey to become SIHAT. Not seeing them make me anxious and sad. But I’m so lucky, masih aktif dengan group surviving APML.

 

Learning to live with uncertainty

 

Yana notice that I’m paying a lot of attention to aches and pains in my body. Dr. Ong kata no signs of cancer now, but can you be sure? I’m still wondering…

 

Will it come back?

What are the chances it will come back?

How will I know if it has come back?

What will I do if it comes back?

When will it come back?

 

This fear grips me, and I really have trouble sleeping, selalu kena panic attack and kalau nak making simple decisionspun boleh rasa menyusahkan hidup.

 

And this year… Yana dah buat keputusan untuk ke next step to deal with uncertainty and fear and feel more hopeful:

 

 

BREATHE ya, Yana mesti bernafas…

 

"First and foremost, i'am ALIVE"

I don't hate cancer but I've decided it time to take a deep breath to let it go and move forward...

"Calling myself a SURVIVOR was hard at first, but here I'am

I'll open the window of my mind, allow the fresh air, new light and new truth to enter

That's life: starting over, one breath at a time.

 

 

Wish me luck 

Kali ke-14 BMB

Lucky - 1st attempt insert branula, dah dapat line cantik

 

5 November 2020 - Yana telah dijadualkan untuk membuat biopsi sum-sum tulang atau in english bone marrow biopsy (BMB) bagi kali ke-14 dan Doktor Ong kata this will be my last biopsy, last untuk tahun ini dan tahun-tahun seterusnya.... Amin 🤲 (doa ye agar tak relapsed).

 

Around jam 10 pagi, Yana dah bersiap sedia tunggu giliran. kali ni, Yana no. 2. 1st pesakit, alhamdullilah, dah selamat buat biopsy. Kejap je uncle Chinese buat dalam 10 minit dah selesai. Next, giliran Yana, pesakit yang dah 13 kali buat biopsy. Ku sangkakan kejap je... tapi dugaan sungguh BMB yang terakhir ni. Awal-awal kita mengaku, memang Yana menjerit kuat tadi ... malu tapi tu la tindakan spontan.

 

After 30 minutes - I'm not lucky enough. Doctors yang hebat pun agree, biopsy kali ni tough, tulang keras sukar nak tusuk, sample darah x dapat (kering Katanya) try ambik sample tulang pun x dpt. More than 3 times trying, and not counting berapa kali doc tusuk jarum... Doctors bagi juga ubat pelali skit... Rasa weng weng kejap tapi x tidor... Still we not lucky enough to get the samples. Doc suh nurse ambik darah dekat tangan je just incase.

Nurse Sue bagi tau, lain-lain pesakit siap tanya pada doktor, kenapa lama sangat procedure biopsy Yana dan kenapa Yana menjerit tadi. doktor & nurse explained yang Yana dah banyak kali kena biopsy dan keadaan tulang Yana sangat keras, sampai doktor pun tak mampu nak tusuk untuk dapat kan sample.

 

Ini la dugan Yana dalam menghadapi bone marrow biopsy, next step kita jumpa doktor in 2021. harap dapat jumpa Dr. Ong dan harap juga tak perlu buat biopsy lagi just regular cek darah sudah la. 

 

Risaunya tak dapat sample dari bone marrow. Risau akan dianggil baik next week, dan risau jika disuruh buat biopsy kali ke 15... 

 

Oh Tidak!!!! Dah nekat, kalau kena buat juga next biopsy, Yana nak request buat dalam Operation theatre je la. let me pengsan dan sila la doctor buat biopsy berapa kali nak cucuk pun ok. Tapi, masih harap tak akan ada next biopsy. 

 

 

Check in guna App MySejahtera sebelum ke daycare tinkgkat 3

Baru lepas biopsi, makanan tengah hari dah sampai dan Yana mash kena baring sebab ada kesan bleeding pada balutan